26 December 2014
My best friend and love for 23 years has Parkinson’s disease and dementia
It seems long ago when we were happy and healthy
Full of joy and adventure
Blessed with a life of travel and good fortune
Many were envious
The perfect couple
Smart, good looking and so in love
Now I’m your caregiver
Worried about bowel movements and falling and gluten free diets
And making appointments, hoping without a scene or backing out at the last minute
We tried everything to get you back to health
Or at least to slow the vicious decline
Friends and strangers tell me how strong I am
But I don’t feel strong
I feel exhausted and sad and angry and alone
Richard moves to memory care next week
High end lodge in the desert like place
With a view of the mountain we love
Maybe he’ll thrive there or simply wait to die
Tears of despair, prayers for a miracle and armies of professionals don’t change the harsh reality
I’ve lost the man I married somewhere along the way slowly and day by day. At first, I didn’t notice
Sometimes he’s still here. A tender kiss, a quiet thank you and I love you
I want my husband back, but he can’t make it
They say that there is a reason for everything but it’s probably just a bunch of crap to make those who suffer feel better
NOTE:
You will find my book Parkinson’s: A Love Story with Dementia for Dessert on Amazon. https://www.amazon.com/Parkinsons-Love-Story-Dementia-Dessert-ebook/dp/B07K4RLC2D/ref=sr_1_1?ie=UTF8&qid=1542135434&sr=8-1&keywords=Parkinson%27s+A+Love+Story+with+Dementia+for+Dessert&dpID=41xS3edPH0L&preST=_SY445_QL70_&dpSrc=srch Your feedback and reviews are most welcome.
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