by Ava Butler | Nov 1, 2022 | Dementia, Grieving, Lewy body dementia, Parkinson's
It’s the Day of the Dead, a time of reverance and celebration. In 1992, my dear husband, Richard and I dressed up as old people for Halloween. We assumed that we would indeed grow old together. It turned out that Halloween 1992 was the only day we would have...
by Ava Butler | Sep 7, 2022 | Caregiving, Dementia, Lewy body dementia, Parkinson's
Incontinence with Dignity by Marilyn Stevenson, a support group member with the Lewy Body Dementia Resource Center https://lewybodyresourcecenter.org/incontinence-with-dignity/ Incontinence is a topic that some people are uncomfortable speaking about and/or...
by Ava Butler | Apr 25, 2022 | Assisted living, Caregiving, Dementia, Depression, Lewy body dementia, Parkinson's, Uncategorized
Zach Mercurio’s article The Science of Mattering: Why Feeling Significant Is So Significant resonates with me. People with dementia or other challenges still need to feel that they are important, that they matter. Everyone does. Zack describes how feeling...
by Ava Butler | Feb 17, 2022 | Assisted living, Caregiving, Dementia, end of life, Lewy body dementia, Parkinson's, Support groups
In my last blog I shared the link to the Five Wishes, a legally binding document describing your end-of-life decisions. In this blog, I share two additional dementia and end-of-life tools. These are from Compassion and Choices organization, which is a fabulous and...
by Ava Butler | Feb 7, 2022 | Caregiving, Dementia, Final wishes, Lewy body dementia, Parkinson's
The New York Times recently had a powerful article titled Who Are We Caring for in the I.C.U.? It features a doctor reckoning with patient’s family members insisting on care that the patient may not want. It breaks my heart that families don’t talk with each...
